ill give it a try, i somewhat believe on eastern medicine to a degree atleast related nerve system and so, they have been studying and practising these for success for god knows how many years but longer than western atleast
lower back and hips for me where it started, cause the flare was bad early and public was too slow and misdiagnose, it spread to shoulder and mid section of spine now aswell
its important to get medication on it as it says that the most effective treatment is early started heavy mix of different combination of drugs used for rheuma and this has proven to be most effective long term when done early, also if not medicated at all through persons life it will worsen eventually and like on my uncles case he had heart surgery later cause it went to heart because he stopped medication, its constant inflammation due to fault in persons immune system so we need meds to lower the inflammation which causes dozens of problems. the treatment goal in any case on every situation is trying to get person pain free as it reads on medical journals for the modern treatment
Mine is most commonly in the lower back but Iāve had pain in my left leg and ribs as well, I was told it was responsible for an attack of Iritis in my eye one time as well, now thatās definitely not fun!
i told public rheuma specialist that i got burning feeling through day on lower back and upper back and ribs and shoulder and hips for year and she said they are uncommon for AS (which is completely uncorrect) and that its too rare in any case so she sent me home with misdiagnose. basically a overpaid idiot. my uncle also had those iritis on his AS he treats it with some cortisone shots to eye, now he has pacemaker cause the inflammation did some dmg to his heart cause his not been treating his rheuma with anything since it was diagnosed when he were on his 30ās, which i found dumb but everyone do their own choises!
Yiiikkeees they never tell you these things. And yeah, was being ironic with exercise being a magical cure. It is all doctors ever say āEat better, exercise, sleep better, stop stressingā well Doc people who do all those things still get horribly ill.
I am hopeful that in my lifetime they will have a cure for chronic pain conditions or even a fricking understanding of it. Thatās all we can hope for I guess. We get worse as we go on but maybe better treatments will come.
The best thing for us was actually covid because they got more research for long covid which is basically the same as ME/CFS (except for the organ damage that is a whole other bucket) and awareness. Sad innit.
I certainly cannot recommend getting Tuberculosis - and this is touching on what Alythena and Afenton said about docs. about 10 years ago, i started coughing up blood at work - got an appointment with a Nurse Practitioner whoās first question was āare you a smoker?ā when i said i was, she promptly said there was nowt wrong with me!!! Got a second opinion off a real doctor who sent me for tests. 2 weeks later a nurse knocked on my door (not Macmillan thankfully) and told me i had Pulmonary Tuberculosis. 12 months of anitibiotics for me and my family, not a pleasant experience - especially when the meds for Tuberculosis have a tendency to āblock you upā
im still baffled there is so many others with this even after told by educated specialist in public that its too rare to be a diagnose. just this post alone has 3 people now, how is this rare, seem more common than rare
Ironic thing is, the most sympathetic doctor Iāve ever spoken to was the one who did my assessment for āunfit for workā for universal credit I can now work 10 hours a month when Iām in a bad flare up and not get told off by the job centre but work better hours when Iām able. That doctor was so understanding of fibro and how much it affects my life.
I canāt wait until the next time I see a doctor/nurse and they ask me that and I can proudly declare āno I donāt!!ā and their computer explodes from the shock that Iāve finally given up
In my opinion, the medical profession are too quick to dismiss things like this at times - you really have to pester them to get a proper diagnosis here in the UK. Heres where i feel for Dawnsteel (figuratively, not literally lol) - Fibromylalgia is a right [redacted] and its more common than people think it is
i started when 17 and quit about 5 years ago and im about to ding 40 in year, have a smoke and throw the pack in bin and thats the end of it, few years from there you have relapse some party and you smoke while drink but then you get sick and remember why its dumb, i smoked few weeks during sail while watch other ppl smoking next to me on deck of the ship but i just quit when the trip was over as i dont really want to put money on it either anymore
Five and a half weeks, I will admit I did switch to a vape so still getting nicotine but thatās better than the cigs and I am definitely feeling healthier for it.
Not coughing my guts up even with the delightful cold my son gave me as an early Christmas pressie this weekendā¦
